2020 Patient and Family Subject Matter Expert (SME) for our Patient Advisory Committee (PAC) recruiting starts in October 2019!
PATIENTS: Are you interested in helping the Network understand how patients feel about different subjects? Would you like to be a voice for other patients?
STAFF: Do you have engaged patients and families and/or active Facility Patient Representatives (FPRs) that would like to speak up on behalf of your other patients?
What do patient SMEs, family members and caregivers do?
• Provide your voice as part of a larger whole, the entire ESRD patient population in the state of Texas. • Represent patients of all treatment modalities. • Share ideas to help improve patient-centered care and communication. • Review patient education materials to ensure they are helpful for patients. • Teach your fellow patients, providers and other stakeholders. • Learn from your fellow patients, providers and other stakeholders. • Celebrate the success of your efforts.
Patient Engagement Calendars
Calendars
2020 Patient Engagement Calendar - English - Spanish
2020 Facility Patient Representative guide for Patient Engagement Calendar - English - Spanish
2020 Patient Engagment Handouts
- January - Take part in your care
- February - Plan ahead for emergencies
- March - Attend a patient and family group meeting
- April - Get to know your Care Team
- May - Learn about patient responsibilities
- June - Participate in your Plan of Care meetings
- July - Learn about different dialysis treatments
- August - Cherish your vascular access
- September - Get your vaccinations
- October - Know the 6 tips to prevent dialysis infections
- November - Take care of your emotional health
- December - Plan for end of life
Patient Engagement Resources
Partnering Patients and Families Enhancing Safety and Quality
Patient and Family Centered Care Checklist
6 Steps to Creating a Culture of Person and Family Engagement in Health Care
Person and Family Engagement Strategy: Sharing with Our Partners
5 Elements of a Successful Patient Engagement Strategy
10 Tips to Help You Become Active in Your Care!
Quality Assurance Performance Improvement Guide
Plan of Care Patient Checklist (Pre and Post Meeting)
PEER SUPPORT PROGRAMS
Buddies Wanted: English and Spanish
PATIENT- AND FAMILY-CENTERED PEER SUPPORT PROGRAMS
Patient Family Engagement Plan Presented by Patients
Topics include:
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Patient Engagement, Peer-to-Peer Support, Peer Mentoring, Care Planning Tips
Patient Engagement Learning and Action Network (PE LAN) Resources
What is a Learning and Action Network (LAN)?
A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.
Watch this video to learn more! - QIO Program, Centers for Medicare & Medicaid Services (CMS)
Patient Engagement and Patient- and Family-Centered Care (PFCC) Resources
- Network 14 Patient Engagement Webinar
- How to Talk to Your Healthcare Team - Life Options Rehabilitation Program
- Take An Active Role in Your Treatment - Information from Dialysis Patient Citizens
- Get Informed - English
- Get Informed - Spanish
- Get Involved - Combined English & Spanish
- Patient Support Group Tips - Combined English and Spanish version
- Patient Support Group Guidebook - AAKP
- Employment and Dialysis - Yes You Can! - Combined English & Spanish
- Diabetes Management
- SPEAK UP - Five Ways to be Active in Your Care at the Hospital - Combined English & Spanish
- Diabetec Foot Care - Combined English & Spanish
- Healthcare Acquired Infections
Patient Engagement and Patient- and Family-Centered Care (PFCC) Websites
PAC Activities
What projects does the PAC work on? Here are some examples:
- Patient Grievances: Help improve communication between patients and staff to reduce conflict
- Patient Experience of Care (ICH CAHPS): Improve the quality and experience of care across the state
- Vascular Access: Help increase fistulas and decrease catheters to improve patient health
- Infection Prevention: Contribute ideas on ways to reduce infections, prevent sepsis, and keep patients healthy
- Vaccinations: Share your ideas on ways to encourage patients to accept recommended vaccinations
- Home Dialysis: Help the Network understand how to educate patients on home therapy programs
- Emergency Preparedness: Help patients learn how to prepare for and respond to an emergency
- Facility Patient Representatives (FPRs): Improve the tools used to recruit and train FPRs - FPR Toolkit – English – Spanish
PAC Recruitment Flyer 2019-2020
2019-2020 Patient and Family SME Application Form - English - Spanish
Send your SME application form to the ESRD Network of Texas, 4099 McEwen, Ste. 820, Dallas, TX 75244 or fax to 972-503-3219.
If you have questions please contact Debbie O'Daniel 469-916-3804
Network PAC Activities
Check out this video created by one of our Network PAC members showing how she THRIVES on dialysis
Patient Engagement & Patient- and Family-Centered Care Archive
Previous Activities
2015 Patient Engagement Learning and Action Network (PE LAN) Resources
What is a Learning and Action Network (LAN)?
A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.
Watch this video to learn more! - QIO Program, Centers for Medicare & Medicaid Services (CMS)
2015 PE LAN Materials
In 2015, Network 14 partnered with 124 facilities and 10+ patient SMES to develop activities designed to enhance outcomes on three patient-driven topics of interest.
Tools and Resources
- Quality Improvement Activity (QIA)
- Campaign 1: Fluid Management Workbook
- Campaign 2: Missed Treatments Workbook
Meetings and Webinars
- Learning Session 1: Project Introduction - March 17 and 18
- Learning Session 2: Developing the FPR Toolkit - April 2, 9, 23, and 30
- LS2 Minutes
- LS2 Presentation Slides
- LS2 Prework: Attitudes about Partnering with Patients - Institute for Patient- and Family-Centered Care
- Utilizing FPRs: Pulse Check - June 9
- Utilizing FPRs Webinar Registration Instructions - This session is optional for PE LAN facilities. The webinar will provide additional instruction to assist you in recruiting and training FPRs.
- Utilizing FPRs: Pulse Check recording
- Utilizing FPRs: Pulse Check Attestation Form
- Learning Session 3: Campaign 1 Training- June 15 and 16
- Learning Session 3 Registration Instructions
- LS3 Presentation Slides - 6/15/15
- LS3 Webinar Recording
- LS3 Webinar Attestation Form - Facilities that failed to attend LS3 must view the recording and submit the attestation form by COB on 6/28/15.
- Learning Session 4: Campaign 2 Instructions - July 15 and 16
- Learning Session 4 Registration Instructions - 6/23/15
- LS4 Presentation Slides
- LS4 Webinar Recording
- LS4 Webinar Attestation Form - Facilities that failed to attend LS4 must view the recording and submit the attestation form by COB on 7/31/15.
- Learning Session 5: Lessons Learned - September 2 and 3
- LS5 Presentation Slides
- LS5 Webinar Recording
- LS5 Webinar Attestation Form - Facilities that failed to attend LS5 must view the recording and submit the attestation form by COB on 9/23/15.
- LS5 Minutes
- 2015 PE LAN Lessons Learned
2014 PE LAN Materials
In 2014, 125 facilities and their patients collaborated to improve Quality of Life and Patient- and Family-Centered Care (PFCC) through three primary activities:
- One Quality Improvement Activity (QIA) - STAFF Materials
- Two Patient Education Campaigns - PATIENT Materials