2019 Patient and Family Subject Matter Expert (SME) for our Patient Advisory Committee (PAC) recruiting starts in October 2018!
PATIENTS: Are you interested in helping the Network understand how patients feel about different subjects? Would you like to be a voice for other patients?
STAFF: Do you have engaged patients and families and/or active Facility Patient Representatives (FPRs) that would like to speak up on behalf of your other patients?
What do patient SMEs, family members and caregivers do?
• Provide your voice as part of a larger whole, the entire ESRD patient population in the state of Texas. • Represent patients of all treatment modalities. • Share ideas to help improve patient-centered care and communication. • Review patient education materials to ensure they are helpful for patients. • Teach your fellow patients, providers and other stakeholders. • Learn from your fellow patients, providers and other stakeholders. • Celebrate the success of your efforts.
Patient Engagement Calendars
Calendars
2019 Patient Engagement Calendar - English - Spanish
2019 Facility Patient Representative guide for Patient Engagement Calendar - English - Spanish
2019 Patient Engagment Handouts
- January - Take part in your care
- February - Plan ahead for emergencies
- March - Attend a patient and family group meeting
- April - Get to know your Care Team
- May - Learn about patient responsibilities
- June - Participate in your Plan of Care meetings
- July - Learn about different dialysis treatments
- August - Cherish your vascular access
- September - Get your vaccinations
- October - Know the 6 tips to prevent dialysis infections
- November - Take care of your emotional health
- December - Plan for end of life
Patient Engagement Resources
Partnering Patients and Families Enhancing Safety and Quality
Patient and Family Centered Care Checklist
6 Steps to Creating a Culture of Person and Family Engagement in Health Care
Person and Family Engagement Strategy: Sharing with Our Partners
5 Elements of a Successful Patient Engagement Strategy
10 Tips to Help You Become Active in Your Care!
Quality Assurance Performance Improvement Guide
Plan of Care Patient Checklist (Pre and Post Meeting)
PATIENT- AND FAMILY-CENTERED PEER SUPPORT PROGRAMS
Patient Family Engagement Plan Presented by Patients
Topics include:
-
Patient Engagement, Peer-to-Peer Support, Peer Mentoring, Care Planning Tips
Patient Engagement Learning and Action Network (PE LAN) Resources
What is a Learning and Action Network (LAN)?
A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.
Watch this video to learn more! - QIO Program, Centers for Medicare & Medicaid Services (CMS)
Patient Engagement and Patient- and Family-Centered Care (PFCC) Resources
- Network 14 Patient Engagement Webinar
- How to Talk to Your Healthcare Team - Life Options Rehabilitation Program
- Take An Active Role in Your Treatment - Information from Dialysis Patient Citizens
- Get Informed - English
- Get Informed - Spanish
- Get Involved - Combined English & Spanish
- Patient Support Group Tips - Combined English and Spanish version
- Patient Support Group Guidebook - AAKP
- Employment and Dialysis - Yes You Can! - Combined English & Spanish
- Diabetes Management
- SPEAK UP - Five Ways to be Active in Your Care at the Hospital - Combined English & Spanish
- Diabetec Foot Care - Combined English & Spanish
- Healthcare Acquired Infections
Patient Engagement and Patient- and Family-Centered Care (PFCC) Websites
PAC Activities
What projects does the PAC work on? Here are some examples:
- Patient Grievances: Help improve communication between patients and staff to reduce conflict
- Patient Experience of Care (ICH CAHPS): Improve the quality and experience of care across the state
- Vascular Access: Help increase fistulas and decrease catheters to improve patient health
- Infection Prevention: Contribute ideas on ways to reduce infections, prevent sepsis, and keep patients healthy
- Vaccinations: Share your ideas on ways to encourage patients to accept recommended vaccinations
- Home Dialysis: Help the Network understand how to educate patients on home therapy programs
- Emergency Preparedness: Help patients learn how to prepare for and respond to an emergency
- Facility Patient Representatives (FPRs): Improve the tools used to recruit and train FPRs - FPR Toolkit – English – Spanish
2019 Patient and Family SME Application Form - English - Spanish
Send your SME application form to the ESRD Network of Texas, 4099 McEwen, Ste. 820, Dallas, TX 75244 or fax to 972-503-3219.
If you have questions please contact Debbie O'Daniel 469-916-3804
Network PAC Activities
Check out this video created by one of our Network PAC members showing how she THRIVES on dialysis
Patient Engagement & Patient- and Family-Centered Care Archive
Previous Activities
2015 Patient Engagement Learning and Action Network (PE LAN) Resources
What is a Learning and Action Network (LAN)?
A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.
Watch this video to learn more! - QIO Program, Centers for Medicare & Medicaid Services (CMS)
2015 PE LAN Materials
In 2015, Network 14 partnered with 124 facilities and 10+ patient SMES to develop activities designed to enhance outcomes on three patient-driven topics of interest.
Tools and Resources
- Quality Improvement Activity (QIA)
- Campaign 1: Fluid Management Workbook
- Campaign 2: Missed Treatments Workbook
Meetings and Webinars
- Learning Session 1: Project Introduction - March 17 and 18
- Learning Session 2: Developing the FPR Toolkit - April 2, 9, 23, and 30
- LS2 Minutes
- LS2 Presentation Slides
- LS2 Prework: Attitudes about Partnering with Patients - Institute for Patient- and Family-Centered Care
- Utilizing FPRs: Pulse Check - June 9
- Utilizing FPRs Webinar Registration Instructions - This session is optional for PE LAN facilities. The webinar will provide additional instruction to assist you in recruiting and training FPRs.
- Utilizing FPRs: Pulse Check recording
- Utilizing FPRs: Pulse Check Attestation Form
- Learning Session 3: Campaign 1 Training- June 15 and 16
- Learning Session 3 Registration Instructions
- LS3 Presentation Slides - 6/15/15
- LS3 Webinar Recording
- LS3 Webinar Attestation Form - Facilities that failed to attend LS3 must view the recording and submit the attestation form by COB on 6/28/15.
- Learning Session 4: Campaign 2 Instructions - July 15 and 16
- Learning Session 4 Registration Instructions - 6/23/15
- LS4 Presentation Slides
- LS4 Webinar Recording
- LS4 Webinar Attestation Form - Facilities that failed to attend LS4 must view the recording and submit the attestation form by COB on 7/31/15.
- Learning Session 5: Lessons Learned - September 2 and 3
- LS5 Presentation Slides
- LS5 Webinar Recording
- LS5 Webinar Attestation Form - Facilities that failed to attend LS5 must view the recording and submit the attestation form by COB on 9/23/15.
- LS5 Minutes
- 2015 PE LAN Lessons Learned
2014 PE LAN Materials
In 2014, 125 facilities and their patients collaborated to improve Quality of Life and Patient- and Family-Centered Care (PFCC) through three primary activities:
- One Quality Improvement Activity (QIA) - STAFF Materials
- Two Patient Education Campaigns - PATIENT Materials