Patient Engagement & Patient- and Family-Centered Care

2018 Patient and Family Subject Matter Expert (SME) for our Patient Advisory Committee (PAC) recruiting starts in October 2017!

PATIENTS: Are you interested in helping the Network understand how patients feel about different subjects? Would you like to be a voice for other patients?
STAFF: Do you have engaged patients and families and/or active Facility Patient Representatives (FPRs) that would like to speak up on behalf of your other patients?

 

What do patient SMEs, family members and caregivers do?

• Provide your voice as part of a larger whole, the entire ESRD patient population in the state of Texas. • Represent patients of all treatment modalities. • Share ideas to help improve patient-centered care and communication. • Review patient education materials to ensure they are helpful for patients. • Teach your fellow patients, providers and other stakeholders. • Learn from your fellow patients, providers and other stakeholders. • Celebrate the success of your efforts.

PAC Activities

What projects does the PAC work on? Here are some examples:

  • Patient Grievances: Help improve communication between patients and staff to reduce conflict
  • Patient Experience of Care (ICH CAHPS): Improve the quality and experience of care across the state
  • Vascular Access: Help increase fistulas and decrease catheters to improve patient health
  • Infection Prevention: Contribute ideas on ways to reduce infections, prevent sepsis, and keep patients healthy
  • Vaccinations: Share your ideas on ways to encourage patients to accept recommended vaccinations
  • Home Dialysis: Help the Network understand how to educate patients on home therapy programs
  • Emergency Preparedness: Help patients learn how to prepare for and respond to an emergency
  • Facility Patient Representatives (FPRs): Improve the tools used to recruit and train FPRs - FPR Toolkit – EnglishSpanish 

    PAC Recruitment Flyer 201

    2018 Patient and Family SME Application Form - English - Spanish 

    Send your SME application form to the ESRD Network of Texas, 4040 McEwen, Ste. 350, Dallas, TX 75244 or fax to 972-503-3219.

    If you have questions please contact Javoszia Sterling, Outreach Coordinator 469-916-3800

    Check out this video created by one of our Network PAC members showing how she THRIVES on dialysis

Patient Engagement Calendars

Calendars

2018 Patient Engagement Calendar - English - Spanish
2018 Facility Patient Representative guide for Patient Engagement Calendar
- English - Spanish

2018 Patient Engagment Handouts

 


2015 Patient Engagement Calendar - English - Spanish
2015 Patient Engagment Handouts

2015 Patient Engagement Learning and Action Network (PE LAN) Resources

What is a Learning and Action Network (LAN)?

A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.

Watch this video to learn more!  - QIO Program, Centers for Medicare & Medicaid Services (CMS)

2015 PE LAN Materials

In 2015, Network 14 partnered with 124 facilities and 10+ patient SMES to develop activities designed to enhance outcomes on three patient-driven topics of interest.

Tools and Resources

  • Quality Improvement Activity (QIA)
    • Activity dates: May and June
    • FPR Toolkit - English - Spanish - Revised 05/2015
  • Campaign 1: Fluid Management Workbook
    • Activity dates: June and July
    • Fluid Management Patient Workbook Module 1 - English  - Spanish  - last updated 6/23/201
    • Fluid Management Patient Workbook Module 2 - English - Spanish - last updated 7/14/2015
  • Campaign 2: Missed Treatments Workbook
    • Activity dates: July and August
    • Missed Treatments Patient Workbook - English  - Spanish - last updated 7/30/2015

Meetings and Webinars

2014 PE LAN Materials

In 2014, 125 facilities and their patients collaborated to improve Quality of Life and Patient- and Family-Centered Care (PFCC) through three primary activities:

2013 PE LAN Materials

Patient Engagement and Patient- and Family-Centered Care (PFCC) Resources

PAC Member Resources

Orientation Webinar

TeamworkPM Webinar