Patient Engagement & Patient- and Family-Centered Care

2018 Patient and Family Subject Matter Expert (SME) for our Patient Advisory Committee (PAC) recruiting starts in October 2017!

PATIENTS: Are you interested in helping the Network understand how patients feel about different subjects? Would you like to be a voice for other patients?
STAFF: Do you have engaged patients and families and/or active Facility Patient Representatives (FPRs) that would like to speak up on behalf of your other patients?


What do patient SMEs, family members and caregivers do?

• Provide your voice as part of a larger whole, the entire ESRD patient population in the state of Texas. • Represent patients of all treatment modalities. • Share ideas to help improve patient-centered care and communication. • Review patient education materials to ensure they are helpful for patients. • Teach your fellow patients, providers and other stakeholders. • Learn from your fellow patients, providers and other stakeholders. • Celebrate the success of your efforts.

PAC Activities

What projects does the PAC work on? Here are some examples:

  • Patient Grievances: Help improve communication between patients and staff to reduce conflict
  • Patient Experience of Care (ICH CAHPS): Improve the quality and experience of care across the state
  • Vascular Access: Help increase fistulas and decrease catheters to improve patient health
  • Infection Prevention: Contribute ideas on ways to reduce infections, prevent sepsis, and keep patients healthy
  • Vaccinations: Share your ideas on ways to encourage patients to accept recommended vaccinations
  • Home Dialysis: Help the Network understand how to educate patients on home therapy programs
  • Emergency Preparedness: Help patients learn how to prepare for and respond to an emergency
  • Facility Patient Representatives (FPRs): Improve the tools used to recruit and train FPRs - FPR Toolkit – EnglishSpanish 

    PAC Recruitment Flyer 201

    2018 Patient and Family SME Application Form - English - Spanish 

    Send your SME application form to the ESRD Network of Texas, 4040 McEwen, Ste. 350, Dallas, TX 75244 or fax to 972-503-3219.

    If you have questions please contact Javoszia Sterling, Outreach Coordinator 469-916-3800

    Check out this video created by one of our Network PAC members showing how she THRIVES on dialysis

2015 Patient Engagement Calendar

The Patient Engagement Calendar will not be updated for 2017. However, the handouts will remain on our website and we encourage you to use them in your annual patient education plans.


2015 Patient Engagment Handouts

2015 Patient Engagement Learning and Action Network (PE LAN) Resources

What is a Learning and Action Network (LAN)?

A Learning and Action Network, or LAN, is a group of healthcare practitioners, providers, stakeholders, and citizens, who come together around an action-based agenda for the purpose of peer-to-peer learning and solution-sharing.

Watch this video to learn more!  - QIO Program, Centers for Medicare & Medicaid Services (CMS)

2015 PE LAN Materials

In 2015, Network 14 partnered with 124 facilities and 10+ patient SMES to develop activities designed to enhance outcomes on three patient-driven topics of interest.

Tools and Resources

  • Quality Improvement Activity (QIA)
    • Activity dates: May and June
    • FPR Toolkit - English - Spanish - Revised 05/2015
  • Campaign 1: Fluid Management Workbook
    • Activity dates: June and July
    • Fluid Management Patient Workbook Module 1 - English  - Spanish  - last updated 6/23/201
    • Fluid Management Patient Workbook Module 2 - English - Spanish - last updated 7/14/2015
  • Campaign 2: Missed Treatments Workbook
    • Activity dates: July and August
    • Missed Treatments Patient Workbook - English  - Spanish - last updated 7/30/2015

Meetings and Webinars

2014 PE LAN Materials

In 2014, 125 facilities and their patients collaborated to improve Quality of Life and Patient- and Family-Centered Care (PFCC) through three primary activities:

2013 PE LAN Materials

Patient Engagement and Patient- and Family-Centered Care (PFCC) Resources

PAC Member Resources

Orientation Webinar

TeamworkPM Webinar